Rare Epilepsies in New York City: Epidemiology and Health Outcomes

Posted Leave a commentPosted in clinical and claims linkages, observational retrospective analysis, prospective data collection

Rare epilepsies are a devastating group of diseases that begin in childhood, and often cause profound neurologic, medical, and psychiatric disabilities. There are reliable epidemiologic estimates for only a few of these diseases. Dr. Grinspan developed unique regular expression keywords, which when combined with INSIGHT’s data identified affected individuals treated by multiple academic medical centers, […]

Modeling Social behavior for Healthcare Utilization in Depression

Posted Leave a commentPosted in observational retrospective analysis

The World Health Organization considers major depressive disorder (MDD) the third-highest cause of disease burden worldwide, and the highest in the developed world. Dr. Pathak has developed analytical methods for identifying MDD using the comprehensive and longitudinal NYC-CDRN electronic health record (EHR) systems data, claims data, online social media data from Twitter and PatientsLikeMe, and […]

High-Need High-Cost Patients

Posted Leave a commentPosted in clinical and claims linkages, health systems demonstration projects, multi-center trials, observational retrospective analysis, prospective data collection

Health systems, clinicians, and patients have all identified High Need High Cost (HNHC) patients as a priority focus for population health programs. HNHC patients are a small proportion (five percent) of patients that have major health problems and account for a disproportionate share (50 percent) of health care utilization. Using our comprehensive linkage infrastructure we […]

All of Us Research Program in a Healthcare Provider Organization.

Posted Leave a commentPosted in multi-center trials, observational retrospective analysis, prospective data collection

Scott P. Turner, BS, 1 Sean T. Pompea, MFA, 1 Kelly L. Williams, MBA, MSN, RN, 3 David A. Kraemer, Jr., BS, 1Evan T. Sholle, MS, 1 Cindy Chen, MA, 1 Curtis L. Cole, MD, 1 , 2 Rainu Kaushal, MD, MPH, 3 andThomas R. Campion, Jr., PhD 1, 3 , 4 Author Information 1 Information Technologies & Services Department, Weill Cornell Medicine, New York, NY; 2 Department of Medicine, Weill Cornell Medicine, New […]